Mother's Day 2023

It's Mother's Day and I will try to finish this on time (He didn't). This year I have been writing overly honest and emotional personal letters for the people closest to me. And my mom wants one for Mother's Day and one for her Birthday. So this one is public and her birthday one will be private. I just want everyone to know she gets two while everyone else just got one. If you get jealous blame her. Normally I make people cry I don't know why she wants two. But I will do my best to explain to you why my Mom is a role model to me and why she should be to you.


My mom didn't get the best Mother's Day this year. She was in the middle of a vacation when my brother fell from his lift and broke both femurs. Once my mom heard the news she drove about 8 hours from Kentucky to get home. My parents don't leave us alone in the hospital. Even the best hospital isn't equipped to deal with someone with our level of disability. It's too easy for something to go wrong when you can't move or speak (can't speak at night for reasons). This means my dad sleeps at the hospital and my mom is there during the day. My mom teaches all of our personal nurses at home. I wouldn't say she is naturally equipped for this task. My mom has a lot of anxiety when it comes to teaching and talking in front of people. This comes from books worth of trauma that I won't talk about here, it's her story to tell. This is a tangent but, people say I should write a book. I think your story is much more interesting and impactful than mine. You should write a book before I do. 


What impresses me is that in spite of not being naturally inclined to teach, she does it and does it well. I think strength, true strength comes when you are afraid or weak but do it anyways. If you wonder how I keep going? Why do I keep doing things I am not naturally equipped to do? I learned it from my mom. My mom is a fighter. I would not be here without her. You are my voice when I can't speak. You are my advocate when I can't advocate for myself. You are my strength. My teacher. My defender, my biggest fan, and my role model. You have been fighting long before I was born and you are still fighting. I love you, Mom and I wouldn't want another one. Happy Mother's Day!








Location: Rochester, NY, USA

Comments

Post a Comment

Popular posts from this blog

2023: A year in review

Image
Do you like recap episodes, flashbacks, and trying to look for the bright side in life? If you said yes to any of those questions you are in the right place. You should still read even if you said no. I need that Dopamine hit from your approval (he's mostly kidding, I think). Well, that break was longer than I had been planning. My last post was in August and maybe life caught up with me. It's one thing to say you will fight for as long as you can it's another thing to actually live it. When I first started writing these posts it was almost a compulsion. I couldn't stop writing. Crip Guy came from maybe the worst time in my life. The only control I had was writing. And that writing was dark and sad. I'm never sharing those journal entries at least while I am alive. I recently re-read those Journals and I am glad to say I am not in that same headspace. I can't say I feel 100% as you can tell from my post schedule(wait you are still a writer?). What I want to say
Read more

A Shut-Ins story

Image
Do you like short stories, music fests, crip pics, and the Shut-Ins? The Shut-Ins played the Fairport Music Fest 23' and like usual they were amazing. The set was punctuated by a bunch of original music. I love that they are writing their music and hope they continue. The first show I saw of the Shut-Ins was a year ago at the same festival with Megan. This year I got to see the band with my mom, Mary, and my best friend Jacob. It was great we had some kombucha and Italian pretzels. If you go to FBC (Fairport) trust me and get those pretzels, I could eat a whole bag by myself.  It was outside and packed. The scent of the grill could be smelled wafting through the air (wafting...wow good word). This might be my last outside concert this year and I was glad I was able to spend it with the Shut-Ins.  Now this wouldn't be a crip guy story without some "interesting" interactions with people. The first part of this story was uplifting to the human spirit and the second made
Read more

Loss part 2

Image
This week I dedicate my post to my friend Laura, who passed away a few weeks ago. Her favorite color was pink so I painted a pink flower for this week's illustration. It doesn't feel real that she is gone. I posted a few weeks ago on her CaringBridge that if it would help I would have given up my wheelchair. When my friend Andrew passed away I wrote that he didn't lose his fight against Duchenne he finished it and I think the same thing applies to Laura. I didn't think I would write another post about loss this soon. I have been procrastinating on this post, hard. Sometimes in not constructive ways. It's a sad and painful one for me to write. This little corner of the muscular dystrophy community seems to have been hit hard in the last few years, especially in the previous few weeks (f#%k muscular dystrophy). You will understand why in a minute. I will try to give a general overview before I start. During May, I lost two friends with forms of muscular dystrophy Andr
Read more