A Halloween Party

I know it's been a while but I have been writing. Some of the stories are pretty depressing and I want to make them mean something. Sometimes the worst parts of life can be used for something good. I love you all very much and know you are not alone in the suck. I hope this means something to someone.

It’s a Halloween tutorial post/my Halloween costume! First, this tutorial is from @genevievesdesignstudio it’s an animated ghost. I think it turned out cute except for one mistake. It’s possible to do this tutorial using the cheapest Wacom tablet and about an inch of hand movement, I checked. You’re welcome. 

Now back to my costume. It’s been many years since I needed to dress up for a Halloween party (sad already?).  I don’t like going to things by myself and I think it’s hard to find a group of people to hang out with. Between starting families, having careers, and other adventures it’s hard to get together. And not to pull the cripple card but it’s even harder when you add a disability, inaccessible housing, and a driver to take you. Also, when people don’t show up last minute my parents have to take me and keep me alive. Sometimes it’s hard to look “normal” when you bring your parents to a bar. Those are the main reasons why outings are usually rare for me. 

However, on some special occasions with months of planning everything works out. My brother’s band @shutinstheband had a Halloween show I could get into. The venue was @fairportbrewingcompany. It was accessible and I inspected the bathroom personally. It’s a relief when bars have wheelchair-friendly bathrooms (get it? Sorry). The show was fantastic by the way. My friend/aide Nick was able to be trained on my medical equipment and drove me. This was huge for me. The current rules for a nurse state that they cannot drive their client. Luckily, I am enrolled in multiple programs so, I was able to pay him and not bring a nurse. Next, I met some cool friends that could go to the show. I have had some experiences where people did not show up. The joy I felt when I saw them almost made me tear up, deep down on the inside because I’m tough (nobody believes you). 

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When I talk about new friends this last year I'm usually talking about Megan. I don't advertise old posts that I have written on other platforms but sometimes I hide some extra writing or some of my current thoughts here. Most people don't read my old posts so I can be even more honest. I will still hold some things back. This isn't a story from my distant past it's current. Real people are involved and I don't want to make them uncomfortable. I guess I want to leave a few things about her behind in case something happens to me.  Every fun outing and personal achievement with very few exceptions this past year involved her. From outdoor concerts to birthday celebrations to Halloween parties. I saw the premiere of the band the Shut-Ins with her. We play video games for too long and watch anime. We even danced a couple of times. I haven't danced in years. She indirectly inspired me to do stand-up. If I am honest I am too attached to her. I know that part will hurt one day but that is my issue to deal with. Still, I wouldn't trade my time with her for anything. I don't know how much time I have left but I am blessed I get to hang out with her. You came into my life just when I needed you the most. What I am trying to say is thank you, Megan. You made this part of my life one of my favorites. 

Now you might be wondering what costume I would choose to celebrate this occasion. I chose the very practical marathon runner. In the picture you will see that I am wearing a Fanny pack, running sneakers, and matching sweatbands and shorts. My nurse Dan let me borrow his real marathon number to complete the ensemble. I did not win, and I’m sorry to disappoint you (ableism?). This night was one of the few times in a long time I was truly independent. Except for one urinal emergency, it was a perfect night. I got to dance, have some drinks, and listen to the musical talents of the Shut-ins. To be honest, just a few months ago I thought nights like Saturday were over for me. I was done and at the time I believed that my favorite memories were behind me. I am glad to tell you I was wrong. With an annoying amount of planning, amazing friends, and a travel urinal you too can go to a Halloween party. I hope you enjoyed my story and artwork. Until next time crips and non-crips, I believe in you.

Disclaimer: I do not support any gangs. Crip stands for cripple.